Patient Experience & Voice
Edwards Lifesciences’ work to improve Patient Experience and Voice supports our Aspirations to Transform Patient Care Through Innovative Technologies and Attract and Engage Talented Employees.
Edwards Lifesciences is focused on providing therapies that save and enhance patient lives. We understand that too often, patients do not have a say in the administration of cardiovascular procedures. As part of our research and development, we work to incorporate patients’ input into the development of our products. By listening to patients, we provide care that meets their individual needs. We know patients do better when they have support from others. For this reason, we sponsor patient listening sessions, support patient advocacy groups and help patients exercise their voices in the policy making process.
Growing the Patient Voice Through PartnershipsWhen patients use their voices, they do more than advocate for themselves—they inspire others to speak up and support each other toward healthier outcomes. The Edwards Lifesciences Foundation provides charitable grants to the American Heart Association to support the Heart Valve Ambassador Program, a group of dedicated individuals who offer resources and support to patients. The Foundation supports Heart Valve Voice—a patient-focused advocacy organization—to develop and share collections of patient stories. Some other patient advocacy programs that the Foundation has supported in the past include the Mended Hearts Trained Accredited Patient Visitor Program and WomenHeart: National Coalition for Women with Heart Disease.
Our annual Patient Day brings together patients and caregivers at our corporate headquarters in Irvine, California. Here they participate in discussions, learn about our innovations and meet the Edwards employees who make our heart valves. Edwards also hopes to give our heart valve recipients the opportunity to connect with other patients and share their experiences. At Patient Day, we empower patients to use their experiences to help themselves and others.
The experience for those suffering from valvular disease remains complex and filled with obstacles. The treatment process can be inconsistent from one patient to the next. Through Patient Days, Edwards gains important insight into the patient journey, from symptoms and diagnosis through recovery, including patient-defined concerns. These learnings help Edwards identify opportunities to address these gaps, and to prioritize tools, support resources and programs we develop to improve patient access, experience and outcomes.
2016 Patient Day
Incorporating Patient Needs
Edwards strives to ensure all patients have a voice in shaping their treatment experience. Many patients benefit from minimally invasive procedures, and we have responded by driving innovation in Transcatheter Aortic Heart Valve (TAVR) technology. TAVR allows physicians to replace heart valves with a catheter instead of surgically opening the chest. To learn more about patient experiences with Edwards’ heart valves, browse our collection of patient stories.
Edwards believes informed patients have a more successful treatment experience. Our website offers information on heart valve disease and treatment, as well as FAQs and a glossary of terminology. Additionally, our NewHeartValve.com microsite provides comprehensive information on aortic stenosis and options for treatment.
Edwards Lifesciences is inspired by listening to the patient voice and continues to improve our patient engagement initiatives. Patients value the opportunity to share their stories with people who can understand their journey; evidence shows that patients with a peer support network have better clinical outcomes. At Patient Days, we empower patients to use their experiences to help themselves and others. We welcomed 100 patients and caregivers to our 2015 Patient Day program.
In a post-event survey, 100 percent of attendees rated the experience as “Excellent.” Participants expressed the value of the opportunity to meet with other patients, and that learning about ways to become an ambassador or peer supporter themselves was an important part of the experience. They called the day “fulfilling,” “inspirational” and “informative.” Edwards is deeply proud of these results and hopes to extend the program’s benefits to more patients as we grow.